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1

Les notions d'autorisation et de consentement dans le contrat médical

Knoppers, Bartha Maria

Journal:

Les Cahiers de droit

Year:

1978

Language:

french

File:

PDF, 489 KB

french, 1978

2

Public variant databases: liability?

Thorogood, Adrian, Cook-Deegan, Robert, Knoppers, Bartha Maria

Journal:

Genetics in Medicine

Year:

2016

Language:

english

File:

PDF, 645 KB

english, 2016

3

Ethics and Big Data in health

Knoppers, Bartha Maria, Thorogood, Adrian Mark

Journal:

Current Opinion in Systems Biology

Year:

2017

Language:

english

File:

PDF, 580 KB

english, 2017

4

Heritable Genome Editing: Who Speaks for “Future” Children?

Knoppers, Bartha Maria, Kleiderman, Erika

Journal:

The CRISPR Journal

Year:

2019

Language:

english

File:

PDF, 212 KB

english, 2019

5

Science and society: Human genetic research: emerging trends in ethics

Knoppers, Bartha Maria, Chadwick, Ruth

Journal:

Nature Reviews Genetics

Year:

2005

Language:

english

File:

PDF, 162 KB

english, 2005

6

Genetic information and the family: are we our brother's keeper?

Bartha Maria Knoppers

Journal:

Trends in Biotechnology

Year:

2002

Language:

english

File:

PDF, 21 KB

english, 2002

7

A P3G generic access agreement for population genomic studies

Knoppers, Bartha Maria, Chisholm, Rex L, Kaye, Jane, Cox, David, Thorogood, Adrian, Burton, Paul, Brookes, Anthony J, Fortier, Isabel, Goodwin, Pat, Harris, Jennifer R, Hveem, Kristian, Kent, Alistair

Journal:

Nature Biotechnology

Year:

2013

Language:

english

File:

PDF, 137 KB

english, 2013

8

Genomic cloud computing: legal and ethical points to consider

Dove, Edward S, Joly, Yann, Tassé, Anne-Marie, Burton, Paul, Chisholm, Rex, Fortier, Isabel, Goodwin, Pat, Harris, Jennifer, Hveem, Kristian, Kaye, Jane, Kent, Alistair, Knoppers, Bartha Maria, Lindpa

Journal:

European Journal of Human Genetics

Year:

2014

Language:

english

File:

PDF, 480 KB

english, 2014

9

Human Genetic Research: Emerging Trends in Ethics

Knoppers, Bartha Maria, Chadwick, Ruth

Journal:

Year:

2006

Language:

english

File:

PDF, 91 KB

english, 2006

10

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Shabani, Mahsa, Dove, Edward S., Murtagh, Madeleine, Knoppers, Bartha Maria, Borry, Pascal

Journal:

Biopreservation and Biobanking

Year:

2017

Language:

english

File:

PDF, 123 KB

english, 2017

11

Policies and strategies to facilitate secondary use of research data in the health sciences

Burton, Paul R, Banner, Natalie, Elliot, Mark J, Knoppers, Bartha Maria, Banks, James

Journal:

International Journal of Epidemiology

Year:

2017

Language:

english

File:

PDF, 222 KB

english, 2017

12

Genetically Enhanced Minors: Whose Responsibility?

Kleiderman, Erika, Boily, Audrey, Knoppers, Bartha Maria

Journal:

American Journal of Bioethics

Year:

2018

Language:

english

File:

PDF, 444 KB

english, 2018

13

From Poetry to Policy: An Interview with Bartha Maria Knoppers

Davies, Kevin, Knoppers, Bartha Maria

Journal:

The CRISPR Journal

Year:

2019

Language:

english

File:

PDF, 183 KB

english, 2019

14

Ethical challenges and innovations in the dissemination of genomic data: the experience of the PERSPECTIVE project

LÃ©vesque, Emmanuelle, Knoppers, Bartha Maria, Simard, Jacques

Journal:

Advances in Genomics and Genetics

Year:

2015

File:

PDF, 576 KB

2015

15

Of the Rights and Best Interests of Future Generations

Kleiderman, Erika, Nguyen, Minh Thu, Knoppers, Bartha Maria

Journal:

American Journal of Bioethics

Year:

2020

File:

PDF, 1.07 MB

2020

16

Modeling consent in the time of COVID-19

Knoppers, Bartha Maria, Beauvais, Michael J S, Joly, Yann, Zawati, Man H, Rousseau, Simon, ChassÃ©, MichaÃ«l, Mooser, Vincent

Journal:

Journal of Law and the Biosciences

Year:

2020

File:

PDF, 206 KB

2020

17

Ethical, Legal, and Social Issues (ELSI) of Responsible Data Sharing Involving Children in Genomics: A Systematic Literature Review of Reasons

Rahimzadeh, Vasiliki, Knoppers, Bartha Maria, Bartlett, Gillian

Journal:

AJOB Empirical Bioethics

Year:

2020

File:

PDF, 2.01 MB

2020

18

Ethical guideposts for allelic variation databases

Bartha Maria Knoppers, Claude M. Laberge

Journal:

Year:

2000

Language:

english

File:

PDF, 166 KB

english, 2000

19

Serious genetic disorders: Can or should they be defined?

Dorothy C. Wertz, Bartha Maria Knoppers

Journal:

American Journal of Medical Genetics Part A

Year:

2002

Language:

english

File:

PDF, 89 KB

english, 2002

20

Duty to recontact: A legal harbinger?

Bartha Maria Knoppers

Journal:

American Journal of Medical Genetics Part A

Year:

2001

Language:

english

File:

PDF, 36 KB

english, 2001

21

Bridging consent: from toll bridges to lift bridges?

Isabelle Budin-Ljøsne, Anne Marie Tassé, Bartha Maria Knoppers, Jennifer R Harris

Journal:

BMC Medical Genomics

Year:

2011

Language:

english

File:

PDF, 180 KB

english, 2011

22

Genomics and policymaking: from static models to complex systems?

Bartha Maria Knoppers

Journal:

Year:

2009

Language:

english

File:

PDF, 202 KB

english, 2009

23

The art and science of biobanking

Bartha Maria Knoppers, Thomas J. Hudson

Journal:

Year:

2011

Language:

english

File:

PDF, 119 KB

english, 2011

24

Partnering in Oncogenetic Research – The INHERIT BRCAs Experience: Opportunities and Challenges

Denise Avard, Peter Bridge, Lucie M. Bucci, Jocelyne Chiquette, Michel Dorval, Francine Durocher, Doug Easton, Béatrice Godard, David Goldgar, Bartha Maria Knoppers, Rachel Laframboise, Bernard Lespér

Journal:

Familial Cancer

Year:

2006

Language:

english

File:

PDF, 215 KB

english, 2006

25

RATIONALE FOR AN INTEGRATED APPROACH TO GENETIC EPIDEMIOLOGY

CLAUDE M. LABERGE, BARTHA MARIA KNOPPERS

Journal:

Year:

1992

Language:

english

File:

PDF, 803 KB

english, 1992

26

Biobanking: International Norms

Bartha Maria Knoppers

Journal:

The Journal of Law, Medicine & Ethics

Year:

2005

Language:

english

File:

PDF, 871 KB

english, 2005

27

Storing Newborn Blood Spots: Modern Controversies

Linda Kharaboyan, Denise Avard, Bartha Maria Knoppers

Journal:

The Journal of Law, Medicine & Ethics

Year:

2004

Language:

english

File:

PDF, 911 KB

english, 2004

28

Introduction

Mark A. Rothstein, Bartha Maria Knoppers

Journal:

The Journal of Law, Medicine & Ethics

Year:

2005

Language:

english

File:

PDF, 128 KB

english, 2005

29

Ethical Issues in Secondary Uses of Human Biological Materials from Mass Disasters

Bartha Maria Knoppers, Madelaine Saginur, Howard Cash

Journal:

The Journal of Law, Medicine & Ethics

Year:

2006

Language:

english

File:

PDF, 151 KB

english, 2006

30

INTRODUCTION: Return of Research Results: How Should Research Results Be Handled?

Bartha Maria Knoppers, Emmanuelle Lévesque

Journal:

The Journal of Law, Medicine & Ethics

Year:

2011

Language:

english

File:

PDF, 80 KB

english, 2011

31

Return of Results: Towards a Lexicon?

Bartha Maria Knoppers, Amy Dam

Journal:

The Journal of Law, Medicine & Ethics

Year:

2011

Language:

english

File:

PDF, 180 KB

english, 2011

32

Unesco and population genetics

Macer, Darryl, Fleming, John, Keyeux, Genoveva, Knoppers, Bartha Maria

Journal:

Year:

1996

File:

PDF, 281 KB

1996

33

10.1038/464

van Ommen, Gertjan, Knoppers, Bartha Maria, Cotton, Richard, Strauss, Joseph, Povey, Sue, Doggett, Norman, Cavalli-Sforza, Luca

Journal:

Nature Genetics

Year:

1998

Language:

english

File:

PDF, 51 KB

english, 1998

34

10.1038/8735

Knoppers, Bartha Maria

Journal:

Nature Genetics

Year:

1999

Language:

english

File:

PDF, 84 KB

english, 1999

35

Retrospective access to data: the ENGAGE consent experience

Tassé, Anne Marie, Budin-Ljøsne, Isabelle, Knoppers, Bartha Maria, Harris, Jennifer R

Journal:

European Journal of Human Genetics

Year:

2010

Language:

english

File:

PDF, 284 KB

english, 2010

36

Blurring lines

Howard, Heidi C, Knoppers, Bartha Maria, Borry, Pascal

Journal:

Year:

2010

Language:

english

File:

PDF, 314 KB

english, 2010

37

Consent to ‘personal’ genomics and privacy

Knoppers, Bartha Maria

Journal:

Year:

2010

Language:

english

File:

PDF, 326 KB

english, 2010

38

Intellectual property rights in publicly funded biobanks: much ado about nothing?

Pathmasiri, Saminda, Deschênes, Mylène, Joly, Yann, Mrejen, Tara, Hemmings, Francis, Knoppers, Bartha Maria

Journal:

Nature Biotechnology

Year:

2011

Language:

english

File:

PDF, 554 KB

english, 2011

39

Tool-sharing issues in coherent population-based research

Knoppers, Bartha Maria, Kent, Alastair

Journal:

Nature Reviews Genetics

Year:

2006

Language:

english

File:

PDF, 653 KB

english, 2006

40

Policy barriers in coherent population-based research

Knoppers, Bartha Maria, Kent, Alastair

Journal:

Nature Reviews Genetics

Year:

2005

Language:

english

File:

PDF, 68 KB

english, 2005

41

SCIENCE AND SOCIETYChildren and incompetent adults in genetic research: consent and safeguards

Knoppers, Bartha Maria, Avard, Denise, Cardinal, Geneviève, Glass, Kathleen Cranley

Journal:

Nature Reviews Genetics

Year:

2002

Language:

english

File:

PDF, 126 KB

english, 2002

42

The emergence of an ethical duty to disclose genetic research results: international perspectives

Knoppers, Bartha Maria, Joly, Yann, Simard, Jacques, Durocher, Francine

Journal:

European Journal of Human Genetics

Year:

2006

Language:

english

File:

PDF, 104 KB

english, 2006

43

The emergence of an ethical duty to disclose genetic research results: international perspectives

Knoppers, Bartha Maria, Joly, Yann, Simard, Jacques, Durocher, Francine

Journal:

European Journal of Human Genetics

Year:

2006

Language:

english

File:

PDF, 30 KB

english, 2006

44

Threading of a glycosylated protein loop through a protein hole: Implications for combination of human chorionic gonadotropin subunits

Yongna Xing, Christopher Williams, Robert K. Campbell, Stephanie Cook, Maria Knoppers, Theresa Addona, Valter Altarocca, William R. Moyle

Journal:

Protein Science

Year:

2001

Language:

english

File:

PDF, 2.51 MB

english, 2001

45

Inhibition of T Cell Activation and Adhesion Functions by Soluble CD2 Protein

Evelyn M. Rabin, Kristin Gordon, Maria H. Knoppers, Michael A. Luther, Edith A. Neidhardt, James F. Flynn, Charles A. Sardonini, Theresa M. Sampo, Michael F. Concino, Michael A. Recny, Ellis L. Reinhe

Journal:

Cellular Immunology

Year:

1993

File:

PDF, 528 KB

1993

46

Communication - The changing landscape of human–animal chimera research: A Canadian regulatory perspective

Sylvie Bordet, Jami Bennett, Bartha Maria Knoppers, Kelly M. McNagny

Journal:

Stem Cell Research

Year:

2010

Language:

english

File:

PDF, 206 KB

english, 2010

47

ETHICAL ISSUES: Ethical Issues in International Collaborative Research onthe Human Genome: The HGP and the HGDP

Bartha Maria Knoppers, Marie Hirtle, Sébastien Lormeau

Journal:

Year:

1996

Language:

english

File:

PDF, 128 KB

english, 1996

48

Control of DNA Samples and Information

Bartha Maria Knoppers, Marie Hirtle, Sébastien Lormeau, Claude M. Laberge, Michelle Laflamme

Journal:

Year:

1998

Language:

english

File:

PDF, 169 KB

english, 1998

49

Understanding Umbilical Cord Blood Banking: What Women Need to Know Before Deciding

Linda Kharaboyan, Bartha Maria Knoppers, Denise Avard, Jeff Nisker

Journal:

Women's Health Issues

Year:

2007

Language:

english

File:

PDF, 77 KB

english, 2007

50

A 21 000 cal years paleoclimatic record from Caçó Lake, northern Brazil: evidence from sedimentary and pollen analyses

Abdelfettah Sifeddine, Ana Luiza Spadano Albuquerque, Marie-Pierre Ledru, Bruno Turcq, Bastiaan Knoppers, Louis Martin, William Zamboni de Mello, Horst Passenau, José Maria Landim Dominguez, Renato Ca

Journal:

Palaeogeography, Palaeoclimatology, Palaeoecology

Year:

2003

Language:

english

File:

PDF, 496 KB

english, 2003

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